An Angel Among Us

“I believe there are angels among us. Sent down to us from somewhere up above. They come to you and me in our darkest hour. To show us how to live, to teach us how to give, to guide us with the light of love.” Alabama

My cousin’s daughter was born with Angelman Syndrome (AS); which is a neuro-genetic disorder that occurs in 1 in 15,000 live births. Some characteristics of AS  include: lack of speech, seizures, developmental delay, and walking and balance disorders. It is often misdiagnosed as cerebral palsy or autism. Individuals with Angelman Syndrome need life-long care. They may not be able to speak, but that doesn’t mean they don’t have anything to say. Imagine what it would feel like to be unable to communicate with the spoken language that so many of us seem to take for granted. These Angels among us may not have the ability to develop and learn as the rest of us do; but they have so much to teach us! 

This is a cake I made for Andy and her sister Sam to celebrate their birthdays last year. I decided to post it to this site to bring awareness to Angelman Syndrome. If you would like more information on AS, please visit www.angelman.org

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1 Comment »

  1. Aunt Judy Said:

    Kristin, WOW! Words can not express the emotions your e-mail to Heather brought me. Tears are just but a few. How caring and thoughtful of you. I know people don’t understand what it is to have a child with AS, but as much as I’ve seen, kind of first hand, I still don’t understand how Heather does it all. If it weren’t for her persistence, constant monitering,even pushing and shoving when needed, to find the right answers, testing, therapy, doctors, I shutter to think where Andy would be today. The Discovery Health Channel did a segment on Andy, again thanks to Heather, to bring awareness to AS. It was very touching. I believe we all have “Angels Among US”, we know Andy does , and I know Heather is certainly one of them. Aunt Judy


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